If this is you or someone you know who is receiving treatment from an NHS Mental Health Trust, details of who to contact in your local area are listed below*. This will enable you to contact the relevant PPiP2 Study Team.
If the treating trust is not listed but you or someone you know meets of eligibility criteria then your/their clinician (GP/psychiatrist) can request the antibodies blood test if they feel it is clinically indicated.
The particular antibodies we recommend they test for are NMDAR -live assay, LGI1. The details for how clinicians can request the test and the request card to use are here:
Enquiries from the US
If you are a US resident needing information about antibody blood testing, you can visit the Autoimmune Encephalitis Alliance website by clicking here.
We would not advise testing for antibodies in someone who was well and not experiencing any symptoms of psychosis. This is because we would not expect the antibodies to be positive. Even if they were present we wouldn’t offer the immune treatment, as it would be difficult measure whether or not the treatment was helping the person.
For all press enquiries, please contact
Communications and Engagement Team
Oxford Health NHS Foundation Trust
If you do not have access to emails, please call us at one of the numbers below, depending on your area of residence:
London and Greater London: 0791 759 2658
East of England and Midlands: 0755 754 2651
South West: 0777 197 2225
If you want to know more about this condition click the blue icon on the left to access an information booklet about antibody mediated psychosis.